Registry to Collect Health Information About Desmoplastic Small Round Cell Tumor

RECRUITING

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This study is a patient registry of people with Desmoplastic Small Round Cell Tumor (DSRCT). A patient registry is a collection of health information about a group of people, and it is usually focused on a specific diagnosis or disease. The purpose of this registry is to create a database- a collection of information-or better understanding DSRCT. Researchers will use the information from this database to learn more about DSRCT and for current and future research on DSRCT.

Conditions:

🦠 Desmoplastic Small Round Cell Tumor

🗓️ Study Start (Actual) 22 December 2020

🗓️ Primary Completion (Estimated) December 2027

✅ Study Completion (Estimated) December 2027

👥 Enrollment (Estimated) 250

🔬 Study Type OBSERVATIONAL

📊 Phase N/A

Locations:

📍 New York, New York, United States

📋 Eligibility Criteria

Description

Inclusion Criteria:

* Participants must have a diagnosis of desmoplastic small round cell tumor
* Participants may be of any age as long as the appropriate consent and assent may be obtained
* Willing to provide historical and longitudinal clinical data

Exclusion Criteria:

* Participant unwilling to provide consent or share historical and longitudinal clinical data

Ages Eligible for Study: N/A to N/A (CHILD, ADULT, OLDER_ADULT)

Sexes Eligible for Study: ALL

Accepts Healthy Volunteers: No

🗓️ Study Record Dates

These dates track the progress of study record and summary results submissions to ClinicalTrials.gov. Study records and reported results are reviewed by the National Library of Medicine (NLM) to make sure they meet specific quality control standards before being posted on the public website.

Study Registration Dates

First Submitted 28 December 2020
First Submitted that Met QC Criteria 28 December 2020
First Posted 30 December 2020

Study Record Updates

Last Update Submitted that Met QC Criteria 8 January 2024
Last Update Posted 9 January 2024
Last Verified January 2024