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Pulmonary Hypertension Biorepository and Registry
Establish a pulmonary hypertension registry and biorepository to lead towards a further understanding of the disease.
Conditions:
🦠 Pulmonary Hypertension 🦠 Pulmonary Arterial Hypertension 🦠 Pulmonary Hypertension Due to Left Heart Disease 🦠 Pulmonary Hypertension, Primary 🦠 Pulmonary Hypertension Due to Lung Diseases and Hypoxia 🦠 Pulmonary Hypertension, Primary, 4 🦠 Pulmonary Hypertension, Primary, 2 🦠 Pulmonary Hypertension, Primary, 3 🦠 Chronic Thromboembolic Pulmonary Hypertension
More conditions available...
🗓️ Study Start (Actual) 10 August 2020
🗓️ Primary Completion (Estimated) 31 December 2025
✅ Study Completion (Estimated) 31 July 2026
👥 Enrollment (Estimated) 300
🔬 Study Type OBSERVATIONAL
📊 Phase N/A
Locations:
📍 Kansas City, Kansas, United States
📍 Kansas City, Kansas, United States

📋 Eligibility Criteria

Description

    Inclusion Criteria:

    • 1. The participant is a patient at TUKHS or has agreed to participate in a study approved by the KUMC Human Research Protection Program (HRPP)
    • 2. The participant has a diagnosis of pulmonary hypertension confirmed by right heart catheterization
    • 3. Patient is ≥ 18 years of age or older

    Exclusion Criteria:

    • 1. Participant declines to participate (living patients only)
    • 2. Participant is unable to provide informed consent (living patients only)
Ages Eligible for Study: 18 Years to N/A (ADULT, OLDER_ADULT)
Sexes Eligible for Study: ALL
Accepts Healthy Volunteers: No

🗓️ Study Record Dates

These dates track the progress of study record and summary results submissions to ClinicalTrials.gov. Study records and reported results are reviewed by the National Library of Medicine (NLM) to make sure they meet specific quality control standards before being posted on the public website.

Study Registration Dates

  • First Submitted 17 March 2021
  • First Submitted that Met QC Criteria 17 March 2021
  • First Posted 22 March 2021

Study Record Updates

  • Last Update Submitted that Met QC Criteria 27 May 2021
  • Last Update Posted 1 June 2021
  • Last Verified May 2021
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