PatientSpot Formerly Known as ArthritisPower
Patient Power is a patient research network and database (registry) to collect prospective information about demographics, self-reported diagnoses and medications, and willingness to participate in research from patients with rheumatoid arthritis (RA), spondyloarthritis (SpA), other musculoskeletal conditions, chronic neurological conditions like migraine, chronic pulmonary conditions like Chronic Obstructive Pulmonary Disease (COPD), asthma, autoimmune dermatological conditions such as psoriasis, and other chronic inflammatory or immune-mediated conditions. In addition, since patients with chronic conditions often have other co-morbidities like cardiovascular health and obesity-related metabolic disorders, these conditions will also be included. Participants will provide information from their smartphones or personal computers. The information will be used by researchers and clinicians to help patients and their providers make better, more informed decisions about treatment of chronic conditions.
Conditions:
🦠 Rheumatoid Arthritis
🦠 Ankylosing Spondylitis
🦠 Fibromyalgia
🦠 Gout
🦠 Crohn Disease
🦠 Juvenile Idiopathic Arthritis
🦠 Lupus Erythematosus
🦠 Myositis
🦠 Osteoarthritis
🦠 Osteoporosis
🦠 Psoriasis
🦠 Psoriatic Arthritis
🦠 Scleroderma
🦠 Dermatomyositis
🦠 Inflammatory Bowel Diseases
🦠 Polymyositis
🦠 Axial Spondyloarthritis
🦠 Diffuse Idiopathic Skeletal Hyperostosis
🦠 Polymyalgia Rheumatica
🦠 Giant Cell Arteritis
🦠 Temporal Arteritis
🦠 Wegener
🦠 Relapsing Polychondritis
🦠 Undifferentiated Connective Tissue Disease
🦠 Spinal Cord Injuries
🦠 Alzheimer Disease
🦠 Amyotrophic Lateral Sclerosis
🦠 Ataxia
🦠 Bell Palsy
🦠 Brain Tumor
🦠 Cerebral Aneurysm
🦠 Epilepsy
🦠 Guillain-Barre Syndrome
🦠 Headache
🦠 Head Injury
🦠 Hydrocephalus
🦠 Lumbar Disc Disease
🦠 Meningitis
🦠 Multiple Sclerosis
🦠 Muscular Dystrophy
🦠 Neurocutaneous Syndromes
🦠 Parkinson Disease
🦠 Stroke
🦠 Cluster Headache
🦠 Tension-Type Headache
🦠 Chronic Obstructive Pulmonary Disease
🦠 Asthma
🦠 Lung Cancer
🦠 Cystic Fibrosis
🦠 Sleep Apnea
🦠 Eczema
🦠 Alopecia
🦠 Chronic Inflammation
🦠 Unstable Angina
🦠 Heart Attack
🦠 Heart Failure
🦠 Arrythmia
🦠 Valve Heart Disease
🦠 High Blood Pressure
🦠 Congenital Heart Disease
🦠 Peripheral Arterial Disease
🦠 Diabetes
🦠 Chronic Liver Disease
🦠 Obesity
More conditions available...
🗓️ Study Start (Actual)
1 April 2015
🗓️ Primary Completion (Estimated)
1 March 2025
✅ Study Completion (Estimated)
1 March 2025
👥 Enrollment (Estimated)
40000
🔬 Study Type
OBSERVATIONAL
📊 Phase
N/A
Locations:
📍
Upper Nyack, New York, United States
Description
Inclusion Criteria:
- * Self-report that a physician has given a diagnosis of a chronic condition listed in the registry.
- * The Registry is only intended at this time for residents of the United States and United States territories and Canada who are nineteen (19) years or older (for Puerto Rico residents, you must be 21 years or older to participate).
- Exclusion Criteria
- • Under 19 years old
Ages Eligible for Study:
19 Years to N/A (ADULT, OLDER_ADULT)
Sexes Eligible for Study: ALL
Accepts Healthy Volunteers:
Yes
These dates track the progress of study record and summary results submissions to ClinicalTrials.gov. Study records and reported
results are reviewed by the National Library of Medicine (NLM) to make sure they meet specific quality control standards before
being posted on the public website.
Study Registration Dates
- First Submitted
12 February 2019
- First Submitted that Met QC Criteria
12 February 2019
- First Posted
15 February 2019
Study Record Updates
- Last Update Submitted that Met QC Criteria
12 December 2023
- Last Update Posted
13 December 2023
- Last Verified
December 2023