RECRUITING
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Observational Study of Pediatric Rheumatic Diseases: The CARRA Registry
Continuation of the CARRA Registry as described in the protocol will support data collection on patients with pediatric-onset rheumatic diseases. The CARRA Registry will form the basis for future CARRA studies. In particular, this observational registry will be used to answer pressing questions about therapeutics used to treat pediatric rheumatic diseases, including safety questions.
Conditions:
🦠 Rheumatic Joint Disease
🗓️ Study Start (Actual) July 2015
🗓️ Primary Completion (Estimated) June 2028
✅ Study Completion (Estimated) December 2028
👥 Enrollment (Estimated) 20000
🔬 Study Type OBSERVATIONAL
📊 Phase N/A
Locations:
📍 Birmingham, Alabama, United States
📍 Phoenix, Arizona, United States
📍 Los Angeles, California, United States
📍 Los Angeles, California, United States
📍 Palo Alto, California, United States
📍 San Diego, California, United States
📍 San Francisco, California, United States
📍 Aurora, Colorado, United States
📍 Hartford, Connecticut, United States
📍 New Haven, Connecticut, United States
📍 Washington, District of Columbia, United States
📍 Gainesville, Florida, United States
📍 Miami, Florida, United States
📍 Orlando, Florida, United States
📍 Saint Petersburg, Florida, United States
📍 Atlanta, Georgia, United States
📍 Augusta, Georgia, United States
📍 Chicago, Illinois, United States
📍 Chicago, Illinois, United States
📍 Chicago, Illinois, United States
📍 Indianapolis, Indiana, United States
📍 Iowa City, Iowa, United States
📍 Kansas City, Kansas, United States
📍 Louisville, Kentucky, United States
📍 Boston, Massachusetts, United States
📍 Boston, Massachusetts, United States
📍 Boston, Massachusetts, United States
📍 Springfield, Massachusetts, United States
📍 Ann Arbor, Michigan, United States
📍 Grand Rapids, Michigan, United States
📍 Grand Rapids, Michigan, United States
📍 Minneapolis, Minnesota, United States
📍 Rochester, Minnesota, United States
📍 Jackson, Mississippi, United States
📍 Kansas City, Missouri, United States
📍 Saint Louis, Missouri, United States
📍 Saint Louis, Missouri, United States
📍 Hackensack, New Jersey, United States
📍 Morristown, New Jersey, United States
📍 New Brunswick, New Jersey, United States
📍 West Orange, New Jersey, United States
📍 Albany, New York, United States
📍 Lake Success, New York, United States
📍 New York, New York, United States
📍 New York, New York, United States
📍 New York, New York, United States
📍 New York, New York, United States
📍 Rochester, New York, United States
📍 Chapel Hill, North Carolina, United States
📍 Charlotte, North Carolina, United States
📍 Durham, North Carolina, United States
📍 Winston-Salem, North Carolina, United States
📍 Fargo, North Dakota, United States
📍 Akron, Ohio, United States
📍 Cincinnati, Ohio, United States
📍 Cleveland, Ohio, United States
📍 Cleveland, Ohio, United States
📍 Cleveland, Ohio, United States
📍 Columbus, Ohio, United States
📍 Portland, Oregon, United States
📍 Hershey, Pennsylvania, United States
📍 Philadelphia, Pennsylvania, United States
📍 Philadelphia, Pennsylvania, United States
📍 Pittsburgh, Pennsylvania, United States
📍 Providence, Rhode Island, United States
📍 Charleston, South Carolina, United States
📍 Nashville, Tennessee, United States
📍 Dallas, Texas, United States
📍 Houston, Texas, United States
📍 Salt Lake City, Utah, United States
📍 Burlington, Vermont, United States
📍 Norfolk, Virginia, United States
📍 Seattle, Washington, United States
📍 Madison, Wisconsin, United States
📍 Wauwatosa, Wisconsin, United States
📍 Calgary, Alberta, Canada
📍 Winnipeg, Manitoba, Canada
📍 Halifax, Nova Scotia, Canada
📍 Toronto, Ontario, Canada
📍 Petach Tikva, Israel
📍 Rome, Italy
📍 San Juan, Puerto Rico
More locations available...

📋 Eligibility Criteria

Description

    Inclusion Criteria:

    • 1. Onset of rheumatic disease prior to age 16 years for JIA and onset prior to age 19 years for all other rheumatic diseases (see appendix A).
    • 2. Subject (and/or parent/legal guardian when required) is able to provide written informed consent and willing to comply with study procedures.
    • 3. Subject and/or parent/legal guardian is willing to be contacted in the future by study staff.

    Exclusion Criteria:

    • 1. Greater than 21 years of age at the time of enrollment.
Ages Eligible for Study: N/A to 21 Years (CHILD, ADULT)
Sexes Eligible for Study: ALL
Accepts Healthy Volunteers: No

🗓️ Study Record Dates

These dates track the progress of study record and summary results submissions to ClinicalTrials.gov. Study records and reported results are reviewed by the National Library of Medicine (NLM) to make sure they meet specific quality control standards before being posted on the public website.

Study Registration Dates

  • First Submitted 13 April 2015
  • First Submitted that Met QC Criteria 13 April 2015
  • First Posted 16 April 2015

Study Record Updates

  • Last Update Submitted that Met QC Criteria 13 February 2024
  • Last Update Posted 14 February 2024
  • Last Verified October 2023
I'm interested ...!!