Community Questions & Discussions

Thoughts on the 'PatientSpot Formerly Known as ArthritisPower' Study for Lupus Patients?

Hello everyone, I recently came across the 'PatientSpot Formerly Known as ArthritisPower' study that aims to address lupus challenges. The approach they're taking is through patient-reported data and real-time disease tracking. I'm curious to hear your thoughts on this. Do you think this method coul...

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Exploring the 'Lupus in Gullah Health' Clinical Trial: What's Your Take?

I recently came across an interesting clinical trial titled 'Lupus in Gullah Health', focusing on understanding the impact of autoimmune diseases in the Gullah community. The Gullah are descendants of enslaved Africans who live in the coastal regions of South Carolina and Georgia. This trial aims to...

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Thoughts on the Ravulizumab Study in Proliferative LN or IgAN

I recently came across a study on Ravulizumab in proliferative Lupus Nephritis (LN) or Immunoglobulin A Nephropathy (IgAN). The objective of this study is to evaluate the safety and efficacy of Ravulizumab in treating these conditions. What are your thoughts on the goals and potential outcomes of th...

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Thoughts on the LNP023 Study for Active Lupus Nephritis Class III-IV, +/- V?

I recently came across the 'Study of Effectiveness and Safety of LNP023 in Patients With Active Lupus Nephritis Class III-IV, +/- V' study and was curious to hear what others think about this approach to addressing lupus challenges. The trial is exploring a new treatment option for those with active...

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Discussion on Clinical Trials for What are your thoughts on the goals and outcomes of the study titled 'Phase 3 Study of Anifrolumab in Adult Patients With Active Proliferative Lupus Nephritis'?

As someone who has participated in clinical trials for lupus, I believe that studies like this one are crucial for the advancement of lupus treatments. While there are always concerns about potential side effects and the uncertainty of trial outcomes, I find comfort in knowing that I am contributing...

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Thoughts on the RESET-SLE Study and its Potential for Lupus Treatment

I recently came across the 'RESET-SLE: A Phase 1/2 Open-Label Study to Evaluate the Safety and Effectiveness of CABA-201 in Subjects With Active Lupus' study, and I'm curious to hear your thoughts. This trial is exploring a new approach to addressing lupus challenges by using CABA-201. What are your...

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Sharing thoughts on the IMPACT Study for APS and Lupus

I recently came across the 'IMPACT Study: IMProve Pregnancy in APS With Certolizumab Therapy' and was curious to hear what others think about its goals and outcomes. This study focuses on using Certolizumab, a medication for rheumatoid arthritis, to improve pregnancy outcomes in patients with Antiph...

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Thoughts on the HOP-STEP Intervention for Lupus Mothers: A Game Changer?

I recently came across the 'The HOP-STEP Intervention: Improving Maternal Health in Women With Lupus sIRB' study, which aims to address some of the unique challenges faced by pregnant women with lupus. The approach combines self-management education, physical activity, and social support. What are y...

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Discussing the Descartes-08 Study on Lupus: What's Your Take?

I recently came across the 'Descartes-08 for Patients With Lupus' study, and I'm curious to hear your thoughts on its goals and outcomes. This phase 3 trial aimed to evaluate the efficacy and safety of anifrolumab in patients with moderately to severely active systemic lupus erythematosus (SLE). Wha...

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Thoughts on Using Nivolumab in Clinical Trials for Autoimmune Disorders like Lupus?

I recently came across a study titled 'Nivolumab in Treating Patients With Autoimmune Disorders and Advanced, Metastatic, or Unresectable Cancer' and it got me wondering - how do we feel about this approach for addressing lupus challenges? The idea of using immunotherapy to potentially alter the cou...

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Thoughts on the 'Patient-Centered Assessment of Symptoms and Outcomes' study for lupus?

I recently came across the 'Patient-Centered Assessment of Symptoms and Outcomes' study, which aims to tackle lupus challenges. This approach prioritizes patients' perspectives and experiences when evaluating the effectiveness of treatments. What are your thoughts on this? Do you believe it's a step...

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Thoughts on the Belimumab Clinical Trial for Early Lupus

I'm curious to hear your thoughts on the study titled 'A Study Describing the Effectiveness and Safety of Belimumab Administered in Adult Patients With Early Systemic Lupus Erythematosus (SLE)'. This phase III, randomized, double-blind, placebo-controlled study aimed to evaluate the safety and effic...

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Thoughts on the Afimetoran Clinical Trial for Lupus Patients

I recently came across the 'A Study Evaluating the Effectiveness and Safety of Afimetoran Compared With Placebo in Patients With Active Lupus (SLE)' study and wanted to hear your thoughts. Do you think this approach of testing a new compound could be a game-changer for lupus management? Or are there...

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Thoughts on a Study for Melanoma Patients with Pre-Existing Autoimmune Diseases

I recently came across a study titled 'Testing of an Educational Tool for Patients With Melanoma and Pre-Existing Autoimmune Disease Who Are Candidates for Immune Checkpoint Inhibitors'. The goal of this study is to assess the effectiveness of an educational tool for melanoma patients with pre-exist...

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Thoughts on the SIRIUS-SLE Extension Study: What does it mean for lupus patients?

Have any of you heard about the recent 'Phase 3 Extension Study to Evaluate Long-term Safety of Ianalumab in Patients With Lupus (SIRIUS-SLE Extension)'? I'm curious to know what the community thinks about the goals and outcomes of this study. How can this research impact the future of lupus treatme...

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